st<\/sup> October.\u00a0 It is one year since the Conference in Kyoto.\u00a0 A lot of the members of Japanese \u201cFamily groups (AAJ)\u201d also present. In addition to the members, many Japanese people who are concerned to the disease joined the Conference.<\/p>\nAt the ADI General Meeting of 28th various subjects were discussed, including the taking over of the President from Henry Brodaty to Orien Reid. We are very glad that all of the members who joined Kyoto International Conference took much of it. As the representative of AAJ\uff64I could express our gratitude towards the members who came from various countries and ADI. Moreover, I could convey that the situations in Japan are changing little by little. The Conference of 2006 is going to be held in Berlin, Germany.<\/p>\n
Lebanon and some other countries were recognizes as new members this year, and<\/p>\n
Taiwan was also welcomed formally. I felt grateful that the subject of the support for Alzheimer was agreed with one assent, as the problem beyond the politics.<\/p>\n
The most fruitful event was the exchange between the members from each country.\u00a0 The members who joined the Conference and the people who listened to their talk agreed with our ideas. Thanks to the people supporting behind, Kyoto Conference is still talked about as a \u201csuccessful meeting.\u201d\u00a0 The four members of \u201cFamily groups\u201d from Iran were sitting next to the ones form Japan.\u00a0 In spite of the fact that \u201c there in almost no support for Alzheimer Care by the government,\u201d Salehi Masomeh joined us.\u00a0 She carried the photos of her mother whom she had been caring for 8 years. The booths themselves were never so beautiful, but, looking at the people who were crying with the<\/p>\n
Carers. I felt the following: this is just \u201cFamily groups(AAJ)\u201d that have passed 25 years and our activity stands on the every carer.\u00a0 Together with a lot of the announcements, Mrs. Umemoto from Tokyo and Mrs. Shinozaki from Fukuoka spoke of the facilities, which are small-scaled but many-functioned.\u00a0 I would heartily like to express my thanks to those two carers.<\/p>\n
(The participants in the Conference were Dr. Issho Matsumoto who is the Chief of the International Exchange Committee and other nine members of \u201cFamily groups(AAJ).\u201d)<\/p>\n
The Care Experiences from Branch Letters-44<\/h1>\n
\u201c I lost my health because of the care for my parents.\u00a0 But I won\u2019t retire my job.\u201d<\/p>\n
By Mr. Y. (a carer)<\/p>\n
Both of my parents went into the hospital in turn.<\/p>\n
It\u2019s 8 years since I began to care my mother.\u00a0 I started to live with my parents in order to care her.\u00a0 She had been suffering cerebrum stoppage and the left-side paralysis.\u00a0 After that she went to the hospital twice since she again suffered the same disease.\u00a0\u00a0 She got a pace-maker inserted by irregular pulse; then she went to the hospital third times by diabetes.\u00a0 She also went to the hospital by the fracture of the backward fall.\u00a0 In addition to it, my father under-went three operations by groin rupture, going into the hospital by the infection of wound bleeding.\u00a0\u00a0 He got a balloon catheter by prostate corpulence.\u00a0 Then he again went into the hospital by the hemorrhage of the wound.\u00a0 In this way, both of my parents went into and out of the hospital again and again.<\/p>\n
My mother went into the care-house.<\/p>\n
My mother became level 2, so she had been living at home with a helper.\u00a0 She came to suffer depression, lost her spirit and smile because of my father\u2019s violent language.\u00a0 This spring, she was obliged to enter a care-house in order to leave him.\u00a0 After the three-month stay at the care-house she took back her smile.\u00a0 Finally I began to relieve from the sense of the guilt that decided the life left for my mother.<\/p>\n
I separated my father for the fatigue from caring both of my parents.<\/p>\n
My father\u2019s forgetfulness increased day by day.\u00a0 He just got angry and uttered violent languages.\u00a0 I went into the hospital twice by trigeminal neuralgia on account of caring him.\u00a0 At last I became a manic-depressive.\u00a0 So much was I tired from his care that I took my vacation last summer and this summer.<\/p>\n
This summer I went out of my house alone and lent a flat in a mansion where I\u2019m living now.\u00a0\u00a0 My husband has also taken a vacation.\u00a0 He is helping me now.\u00a0 He is taking pills for curing the stress, which has come from caring him.\u00a0 I\u2019m very sorry to see him in trouble just for my parents.\u00a0 My energy have come to the limit, because I am obliged to take care of our home, work and child-bringing.<\/p>\n
The only help is my daughter\u2019s smiling face.<\/p>\n
It is our daughter\u2019s smile that supports our sinking home.\u00a0 I have been informing our care-manager of the collapse of our home and disability of our caring power.\u00a0\u00a0 The situation, however, has never improved.\u00a0 It may be because it is the trouble of others from the view-point of the care-manager.\u00a0 In addition to it, my daughter who is now in the second year of a junior high school desiring to live with us.\u00a0 I have decided to get him enter a group-home in order not to involve my daughter.<\/p>\n
It took a long time to persuade him to visit a neurologist.\u00a0 As a result, he was diagnosed as suffering Alzheimer.\u00a0\u00a0 He was awake at night walking round and stayed sleeping during the daytime.\u00a0 There were no bounds to him love of money.\u00a0 His persecution complex escalated gradually.\u00a0 As is seen in other sufferers, he used allusive language.\u00a0 So I could not relaxed in any way.\u00a0 Frankly speaking, as I lent a flat in a mansion as I referred before, I came to feel easy.<\/p>\n
I won\u2019t quit my job, however hard my life is.<\/p>\n
Everybody may think that I had better quit my job as I have lose my health because of caring my father.\u00a0 On my side, however, I think that I will have a grudge against my parents some day since I have been caring them.\u00a0 This is just the thing I won\u2019t do !\u00a0 There is no limit within the child-bringing and caring some people who is living nearby.\u00a0 Nobody answers to the question when this situation will end.<\/p>\n
As like as I have been wishing the happiness of my daughter, I wish the one of my parents.\u00a0 I always wish the happiness of every member of my family.\u00a0 I feel sorry it is beyond description to have such a dream.<\/p>\n
It is sad and hard to live on.<\/p>\n
There are various styles of caring one\u2019s propinquity.\u00a0 No one knows whether or my way of caring is right or wrong.\u00a0 The hardness of caring cannot be understood by the people who have no care experiences.\u00a0 It seems to me there is no equality in this world.<\/p>\n
I sincerely believe that there will be some good omen, if I go on living without resignation.<\/p>\n
The Proper Committee of Dementia of Early Onset<\/span><\/strong><\/p>\nThe Joint Committee of the Proper Committee of Dementia of Early Onset and the Proper Committee of Research was opened on the 23rd<\/sup> of October.\u00a0 It was decided that the thought of the sufferers would be taken up by the former committee.\u00a0 They discussed the subject that the sufferers themselves would be able to join the events in each branch from now on. \u00a0They are going to introduce the members the meeting of \u201c Sitting in the Sun\u201d in the Hiroshima branch.<\/p>\nIt was also discussed what they should do in order to convey the society of the thought of the sufferers themselves.\u00a0 In the campaign to let the people know about Alzheimer, the important point of the activity is the network with suffers themselves in the center.\u00a0 Actually the activity is now on the stage of try and error.\u00a0 So the aim of this year is to collect as much information as possible concerning the subject.\u00a0 When our wish has come true, the sufferers will be able to talk with each other and the chance will bring up \u201cthe thought of the sufferers themselves.\u201d<\/p>\n
We are going to let the members fill out the questionnaire of the impression, which they had when they were involved with the sufferers.\u00a0 It will help us to make up the report and to go on our activity from now on.\u00a0 I\u2019m sorry you have to answer a lot of questionnaires and the branches will be busier and busier.\u00a0 If you notice that the sufferers join the events, I would like you to inform us the fact.<\/p>\n
Thank you for your cooperation.<\/p>\n
( Ms. Yuko Okita, Staff of the secretariat in AAJ)<\/p>\n
<\/sup><\/p>\n","protected":false},"excerpt":{"rendered":"ALZHEIMER\u2019S ASSOCIATION JAPAN, MEWSLETTER \u201cPole-Pole\u201d BULLETIN NO\uff64304 November 2005 office@alzheimer.or.jp htt […]<\/p>\n","protected":false},"author":1,"featured_media":13545,"parent":5044,"menu_order":2010,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_lightning_design_setting":[],"vkexunit_cta_each_option":"","footnotes":""},"class_list":["post-5227","page","type-page","status-publish","has-post-thumbnail","hentry"],"_links":{"self":[{"href":"https:\/\/www.alzheimer.or.jp\/index.php?rest_route=\/wp\/v2\/pages\/5227"}],"collection":[{"href":"https:\/\/www.alzheimer.or.jp\/index.php?rest_route=\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.alzheimer.or.jp\/index.php?rest_route=\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.alzheimer.or.jp\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.alzheimer.or.jp\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=5227"}],"version-history":[{"count":0,"href":"https:\/\/www.alzheimer.or.jp\/index.php?rest_route=\/wp\/v2\/pages\/5227\/revisions"}],"up":[{"embeddable":true,"href":"https:\/\/www.alzheimer.or.jp\/index.php?rest_route=\/wp\/v2\/posts\/5044"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.alzheimer.or.jp\/index.php?rest_route=\/wp\/v2\/media\/13545"}],"wp:attachment":[{"href":"https:\/\/www.alzheimer.or.jp\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=5227"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}